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National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)

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NationalRareDiseasesRegistry_2014.pdf (518.6 KB)
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URI: http://hdl.handle.net/20.500.12105/7413
ISSN: 1750-1172
DOI: 10.1186/1750-1172-9-S1-P5

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2014

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7th European Conference on Rare Diseases and Orphan Products (ERCD 2014)

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Rare Disease Orphan Drug Data Harmonization Common Data Element Insurance Card

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Orphanet J Rare Dis. 2014; 9(Suppl 1): P5.

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Instituto de Investigación de Enfermedades Raras (IIER)

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https://doi.org/10.1186/1750-1172-9-S1-P5

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conference paper