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National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)

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dc.contributor.authorAlonso-Ferreira, Veronica
dc.contributor.authorAbaitua-Borda, Ignacio
dc.contributor.authorZurriaga, Óscar
dc.contributor.authorAstray, Jenaro
dc.contributor.authorErrezola Saizar, Manuel
dc.contributor.authorAldana-Espinal, Josefa M
dc.contributor.authorMargolles, Mario J
dc.contributor.authorJiménez, Josep
dc.contributor.authorPalomar, Joaquín A
dc.contributor.authorSantana, Milagrosa
dc.contributor.authorRamalle-Gómara, Enrique
dc.contributor.authorRamos, Julián Mauro
dc.contributor.authorArribas Monzón, Federico Eduardo
dc.contributor.authorAlamo-Sanz, Rufino
dc.contributor.authorGutiérrez-Ávila, Gonzalo
dc.contributor.authorGalmés, Antònia
dc.contributor.authorGarcía-Ribes, Miguel
dc.contributor.authorNavarro, Carmen
dc.contributor.authorArdanaz, Eva
dc.contributor.authorPosada De la Paz, Manuel
dc.contributor.funderInstituto de Salud Carlos III
dc.date.accessioned2019-03-27T16:01:06Z
dc.date.available2019-03-27T16:01:06Z
dc.date.issued2014
dc.description7th European Conference on Rare Diseases and Orphan Products (ERCD 2014)es_ES
dc.format.number(Suppl 1)es_ES
dc.format.pageP5es_ES
dc.format.volume9es_ES
dc.identifier.citationOrphanet J Rare Dis. 2014; 9(Suppl 1): P5.es_ES
dc.identifier.doi10.1186/1750-1172-9-S1-P5es_ES
dc.identifier.e-issn1750-1172es_ES
dc.identifier.issn1750-1172es_ES
dc.identifier.journalOrphanet Journal of Rare Diseaseses_ES
dc.identifier.urihttp://hdl.handle.net/20.500.12105/7413
dc.language.isospaes_ES
dc.publisherBioMed Central (BMC)
dc.relation.publisherversionhttps://doi.org/10.1186/1750-1172-9-S1-P5es_ES
dc.repisalud.centroISCIII::Instituto de Investigación de Enfermedades Rarases_ES
dc.repisalud.institucionISCIIIes_ES
dc.rights.accessRightsopen accesses_ES
dc.rights.licenseAtribución 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/*
dc.subjectRare Diseasees_ES
dc.subjectOrphan Druges_ES
dc.subjectData Harmonizationes_ES
dc.subjectCommon Data Elementes_ES
dc.subjectInsurance Cardes_ES
dc.titleNational rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)es_ES
dc.typeconference paperes_ES
dspace.entity.typePublication
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