Publication:
National Rare Disease Registries: overview from Spain

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dc.contributor.authorPosada De la Paz, Manuel
dc.contributor.authorAlonso-Ferreira, Veronica
dc.contributor.authorZurriaga, Óscar
dc.contributor.authorAstray, Jenaro
dc.contributor.authorAldana-Espinal, Josefa M
dc.contributor.authorMargolles, Mario J
dc.contributor.authorJiménez, Josep
dc.contributor.authorPalomar, Joaquín A
dc.contributor.authorSantana, Milagrosa
dc.contributor.authorRamalle-Gómara, Enrique
dc.contributor.authorRamos, Julián Mauro
dc.contributor.authorArribas Monzón, Federico Eduardo
dc.contributor.authorAlamo-Sanz, Rufino
dc.contributor.authorGutiérrez-Ávila, Gonzalo
dc.contributor.authorGalmés, Antònia
dc.contributor.authorGarcía Ribes, Miguel
dc.contributor.authorNavarro, Carmen
dc.contributor.authorErrezola Saizar, Manuel
dc.contributor.authorArdanaz, Eva
dc.contributor.authorAlmansa, A
dc.contributor.authorGarcia-Primo, Patricia
dc.contributor.authorCarroquino, MJ
dc.contributor.authorAbaitua-Borda, Ignacio
dc.date.accessioned2023-03-08T13:48:34Z
dc.date.available2023-03-08T13:48:34Z
dc.date.issued2014
dc.description7th European Conference on Rare Diseases and Orphan Products (ECRD 2014).es_ES
dc.description.peerreviewedNoes_ES
dc.format.numberSuppl 1es_ES
dc.format.pageO8es_ES
dc.format.volume9es_ES
dc.identifier.citationOrphanet Journal of Rare Diseases. 2014 9(Suppl 1):O8.es_ES
dc.identifier.doi10.1186/1750-1172-9-S1-O8es_ES
dc.identifier.issn1750-1172es_ES
dc.identifier.journalOrphanet Journal of Rare Diseaseses_ES
dc.identifier.urihttp://hdl.handle.net/20.500.12105/15591
dc.language.isoenges_ES
dc.publisherBioMed Central (BMC)
dc.relation.publisherversionhttps://doi.org/10.1186/1750-1172-9-S1-O8es_ES
dc.repisalud.centroISCIII::Instituto de Investigación de Enfermedades Rarases_ES
dc.repisalud.institucionISCIIIes_ES
dc.rights.accessRightsopen accesses_ES
dc.rights.licenseAtribución 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/*
dc.subjectRare diseaseses_ES
dc.subjectNational Rare Disease Registrieses_ES
dc.subjectSpaines_ES
dc.subjectSpainRDRes_ES
dc.titleNational Rare Disease Registries: overview from Spaines_ES
dc.typeconference paperes_ES
dc.type.hasVersionVoRes_ES
dspace.entity.typePublication
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