Publication:
EPIRARE survey on activities and needs of rare disease registries in the European Union

Simple item page
dc.contributor.authorTaruscio, Domenica
dc.contributor.authorGainotti, Sabina
dc.contributor.authorVittozzi, Luciano
dc.contributor.authorBianchi, Fabrizio
dc.contributor.authorEnsini, Monica
dc.contributor.authorPosada De la Paz, Manuel
dc.contributor.funderUnión Europea. Comisión Europeaes_ES
dc.date.accessioned2023-03-09T10:13:07Z
dc.date.available2023-03-09T10:13:07Z
dc.date.issued2012-11
dc.descriptionFrom 6th European Conference on Rare Diseases and Orphan Products Brussels, Belgium. 23-25 May 2012.
dc.description.peerreviewedSíes_ES
dc.description.sponsorshipThe EPIRARE project is co-funded by the European Commission with a contribution of 661400 Euro (Grant n. 20101202).es_ES
dc.format.numberSuppl 2es_ES
dc.format.pageA22es_ES
dc.format.volume7es_ES
dc.identifier.citationOrphanet Journal of Rare Diseases. 2012 7(Suppl 2):A22.es_ES
dc.identifier.doi10.1186/1750-1172-7-S2-A22es_ES
dc.identifier.issn1750-1172es_ES
dc.identifier.journalOrphanet Journal of Rare Diseaseses_ES
dc.identifier.urihttp://hdl.handle.net/20.500.12105/15597
dc.language.isoenges_ES
dc.publisherBioMed Central (BMC)es_ES
dc.relation.projectIDinfo:eu-repo/grantAgreement/CE/20101202es_ES
dc.relation.publisherversionhttps://doi.org/10.1186/1750-1172-7-S2-A22es_ES
dc.repisalud.centroISCIII::Instituto de Investigación de Enfermedades Rarases_ES
dc.repisalud.institucionISCIIIes_ES
dc.rights.accessRightsopen accesses_ES
dc.rights.licenseAtribución 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/*
dc.subjectRare diseaseses_ES
dc.subjectEuropean Uniones_ES
dc.subjectEPIRARE projectes_ES
dc.subjectGoverning Bodyes_ES
dc.subjectExpert Advicees_ES
dc.subjectPlatform Servicees_ES
dc.titleEPIRARE survey on activities and needs of rare disease registries in the European Uniones_ES
dc.typeconference paperes_ES
dc.type.hasVersionVoRes_ES
dspace.entity.typePublication
relation.isAuthorOfPublicationc474ba31-7f20-4966-a77e-34f9bf4f3602
relation.isAuthorOfPublication.latestForDiscoveryc474ba31-7f20-4966-a77e-34f9bf4f3602

Files

Original bundle

Now showing 1 - 1 of 1
Thumbnail Image
Name:
EPIRARE_SurveyActivitiesNeeds_2012.pdf
Size:
69.17 KB
Format:
Adobe Portable Document Format
Description:
Download

Collections

Instituto de Investigación de Enfermedades Raras (IIER)