National Rare Disease Registries: overview from Spain

Posada De la Paz, ManuelAlonso-Ferreira, VeronicaZurriaga, ÓscarAstray, JenaroAldana-Espinal, Josefa MMargolles, Mario JJiménez, JosepPalomar, Joaquín ASantana, MilagrosaRamalle-Gómara, EnriqueRamos, Julián MauroArribas Monzón, Federico EduardoAlamo-Sanz, RufinoGutiérrez-Ávila, GonzaloGalmés, AntòniaGarcía Ribes, MiguelNavarro, CarmenErrezola Saizar, ManuelArdanaz, EvaAlmansa, AGarcia-Primo, PatriciaCarroquino, MJAbaitua-Borda, Ignacio2023-03-082023-03-082014Orphanet Journal of Rare Diseases. 2014 9(Suppl 1):O8.1750-1172http://hdl.handle.net/20.500.12105/155917th European Conference on Rare Diseases and Orphan Products (ECRD 2014).engVoRhttp://creativecommons.org/licenses/by/4.0/Rare diseasesNational Rare Disease RegistriesSpainSpainRDRNational Rare Disease Registries: overview from SpainAtribución 4.0 Internacional9Suppl 1O810.1186/1750-1172-9-S1-O8Orphanet Journal of Rare Diseasesopen access