EPIRARE survey on activities and needs of rare disease registries in the European Union

Taruscio, DomenicaGainotti, SabinaVittozzi, LucianoBianchi, FabrizioEnsini, MonicaPosada De la Paz, Manuel2023-03-092023-03-092012-11Orphanet Journal of Rare Diseases. 2012 7(Suppl 2):A22.1750-1172http://hdl.handle.net/20.500.12105/15597From 6th European Conference on Rare Diseases and Orphan Products Brussels, Belgium. 23-25 May 2012.engVoRhttp://creativecommons.org/licenses/by/4.0/Rare diseasesEuropean UnionEPIRARE projectGoverning BodyExpert AdvicePlatform ServiceEPIRARE survey on activities and needs of rare disease registries in the European UnionAtribución 4.0 Internacional7Suppl 2A2210.1186/1750-1172-7-S2-A22Orphanet Journal of Rare Diseasesopen access