Follow-up protocol of patients with cystic fibrosis diagnosed by newborn screening

Gartner, SilviaMondejar-Lopez, PedroAsensio de la Cruz, OscarAlonso, Maria JoseAlvarez, MarinaAndres Martin, AnselmoBarrio Gomez de Aguero, Maria IsabelCabero Perez, Maria JesusCaro Aguilera, PilarCols Roig, MariaCortell Aznar-Perez, IsidoroCosta Colomer, JordiDelgado-Pecellin, IsabelEscribano Montaner, AmparoFiguerola Mulet, JoanGarcia Hernandez, GloriaGuayarte, PilarGil Ortega, DavidGomez Pastrana, DavidLamas Ferreiro, AdelaidaMarin Soria, Jose LuisMartin de Vicente, CarlosNavarro Merino, MartinOliva Hernandez, ConcepcionPerez-Frias, JavierPerez Ruiz, EstelaRovira Amigo, SandraSalcedo Posadas, AntonioSánchez-Solís, ManuelSirvent Gomez, JosepVazquez Cordero, CarlosVilla Asensi, Jose RamonSoc Espanola Neumologia Pediat2024-09-102024-09-102019-04Gartner S, Mondejar-Lopez P, Asensio De La Cruz O, Alonso MJ, Alvarez M, Andres Martin A, et al. Follow-up protocol of patients with cystic fibrosis diagnosed by newborn screening. An Pediatr. 2019 Apr;90(4):251.e1. Epub 2018 Dec 28.1695-4033http://hdl.handle.net/20.500.13003/17443https://hdl.handle.net/20.500.12105/22684Newborn screening (NBS) for cystic fibrosis (CF) is well-established in many countries and provides the opportunity for an early diagnosis and treatment before the development of irreversible structural lung damage. In 1999, Catalonia, Castilla-Leon, and the Balearic Islands started the NBS programme for CF. In the last 10 years its implementation rapidly spread and all the autonomies offer the NBS programme for CF since 2015. There are many different strategies across Spain. It is believed that it is very opportune to have an updated and consensual guide for the diagnosis, follow-up, and treatment of patients diagnosed by neonatal screening. (c) 2019 Asociacion Espanola de Pediatria. Published by Elsevier Espana, S.L.U.spahttp://creativecommons.org/licenses/by-nc-nd/4.0/Cystic fibrosisNewborn screeningGuidelines for diagnosis and treatmentAftercareInfant, NewbornSpainHumansNeonatal ScreeningCystic FibrosisPractice Guidelines as TopicFollow-up protocol of patients with cystic fibrosis diagnosed by newborn screeningresearch articleAttribution-NonCommercial-NoDerivatives 4.0 International30598406904251.e110.1016/j.anpedi.2018.11.0091696-4608Anales de Pediatriaopen accessFibrosis QuísticaGuías de Práctica Clínica como AsuntoHumanosTamizaje NeonatalRecién NacidoCuidados PosterioresEspaña2-s2.0-85058706003462858100012L2001417385