2026-08-29T14:55:13Zhttps://repisalud.isciii.es/rest/oai/request

oai:repisalud.isciii.es:20.500.12105/250722025-12-18T13:01:17Zcom_20.500.12105_2052com_20.500.12105_2051col_20.500.12105_19616

00925njm 22002777a 4500 dc Jeanson, Francis author Gibson, Spencer J author Alper, Pinar author Bernier, Alexander author Woolley, J Patrick author Mietchen, Daniel author Strug, Andrzej author Becker, Regina author Kamerling, Pim author Sánchez González, María Del Carmen author Mah, Nancy author Novakowski, Ann author Wilkinson, Mark D author Benhamed, Oussama Mohammed author Landi, Annalisa author Krog, Georg Philip author Müller, Heimo author Riaz, Umar author Veal, Colin author Holub, Petr author van Enckevort, Esther author Brookes, Anthony J author 2024-05-08 Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical resources that must also respect applicable use conditions. Defining a standard to structure and manage these use conditions is a complex and challenging task. This is exemplified by a near unlimited range of asset types, a high variability of applicable conditions, and differing applications at the individual or collective level. Furthermore, the specifics and granularity required are likely to vary depending on the ultimate contexts of use. All these factors confound alignment of institutional missions, funding objectives, regulatory and technical requirements to facilitate effective sharing. The presented work highlights the complexity and diversity of the problem, reviews the current state of the art, and emphasises the need for a flexible and adaptable approach. We propose Digital Use Conditions (DUC) as a framework that addresses these needs by leveraging existing standards, striking a balance between expressiveness versus ambiguity, and considering the breadth of applicable information with their context of use. Sci Data. 2024 May 8;11(1):464. 10.1038/s41597-024-03280-6 2052-4463 Scientific data 38719839 https://hdl.handle.net/20.500.12105/25072 Getting your DUCs in a row - standardising the representation of Digital Use Conditions