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oai:repisalud.isciii.es:20.500.12105/158782025-06-18T06:23:52Zcom_20.500.12105_2052com_20.500.12105_2051col_20.500.12105_19616

00925njm 22002777a 4500 dc Micai, Martina author Fulceri, Francesca author Salvitti, Tommaso author Romano, Giovanna author Poustka, Luise author Diehm, Robert author Iskrov, Georgi author Stefanov, Rumen author Guillon, Quentin author Rogé, Bernadette author Staines, Anthony author Sweeney, Mary Rose author Boilson, Andrew Martin author Leósdóttir, Thora author Saemundsen, Evald author Moilanen, Irma author Ebeling, Hanna author Yliherva, Anneli author Gissler, Mika author Parviainen, Tarja author Tani, Pekka author Kawa, Rafal author Pisula, Eva author Vicente, Astrid author Rasga, Célia author Budişteanu, Magdalena author Dale, Ian author Povey, Carol author Flores, Noelia author Jenaro, Cristina author Monroy, Maria Luisa author Garcia-Primo, Patricia author Charman, Tony author Cramer, Susanne author Warberg, Christine Kloster author Canal-Bedia, Ricardo author Posada De la Paz, Manuel author Schendel, Diana author Scattoni, Maria Luisa author 2022-06 There is very little knowledge regarding autistic adult services, practices, and delivery. The study objective was to improve understanding of current services and practices for autistic adults and opportunities for improvement as part of the Autism Spectrum Disorder in the European Union (ASDEU) project. Separate survey versions were created for autistic adults, carers of autistic adults, and professionals in adult services. 2,009 persons responded to the survey and 1,085 (54%) of them completed at least one of the services sections: 469 autistic adults (65% female; 55% <35 years old), 441 carers of autistic adults (27% female; 6% <35 years old), 175 professionals in adult services (76% female; 67% in non-medical services). Top choices by autistic adults, carers or professionals for services best suiting their current needs were: residential services: "help in own home" (adults, carers of high independent adults, professionals), "fulltime residential facility" (carers of low independent adults); employment services: "job mentors" (adults, carers of high independent adults, professionals), "Sheltered employment" (carers of low independent adults); education services: "support in regular education setting" (all groups); financial services: financial support in lieu of employment ("Supplementary income for persons unable to have full employment" for adults, "full pension" for carers of low independent adults) or to supplement employment earnings for carers of high independent adults and professionals; social services: "behavior training" (adults) and "life skills training" (carers and professionals). Waiting times for specific services were generally < 1 month or 1-3 months, except for residential services which could be up to 6 months; most professionals were uninformed of waiting times (>50% responded "don't know"). Five of seven residential services features recommended for autistic adults were experienced by <50% of adults. The knowledge of good local services models that work well for autistic adults was generally low across all services areas. The variation in services experiences and perceptions reported by autistic adults, carers, or professionals underscore the need to query all groups for a complete picture of community services availability and needs. The results showed areas for potential improvement in autistic adult services delivery in the EU to achieve recommended standards. Front Psychiatry. 2022 Jun 10;13:919234. 10.3389/fpsyt.2022.919234 1664-0640 Frontiers in psychiatry 35757227 http://hdl.handle.net/20.500.12105/15878 Autism spectrum disorders Adults Residential service Employment service Education service Financial service Social service Autistic Adult Services Availability, Preferences, and User Experiences: Results From the Autism Spectrum Disorder in the European Union Survey