2026-08-29T08:19:26Zhttps://repisalud.isciii.es/rest/oai/requestoai:repisalud.isciii.es:20.500.12105/145152024-11-29T12:26:03Zcom_20.500.12105_2052com_20.500.12105_2051com_20.500.12105_15322col_20.500.12105_19608col_20.500.12105_16988
Repisalud
author
Ambrosio, Leire
author
Portillo, Mari Carmen
author
Rodriguez-Blazquez, Carmen
author
Rodríguez-Violante, Mayela
author
Martínez-Castrillo, Juan Carlos
author
Campos Arillo, Víctor
author
Garretto, Nélida
author
Arakaki, Tomoko
author
Serrano-Dueñas, Marcos
author
Álvarez, Mario
author
Pedroso Ibáñez, Ivonne
author
Carvajal, Ana
author
Martínez-Martín, Pablo
2022-05-25T09:35:26Z
2022-05-25T09:35:26Z
2016-10
NPJ Parkinsons Dis. 2016 Oct 20;2:16022.
10.1038/npjparkd.2016.22
2373-8057
NPJ Parkinson's Disease
28725703
http://hdl.handle.net/20.500.12105/14515
Understanding how a person lives with a chronic illness, such as Parkinson's disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean±s.d.) 66.67±10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach's alpha values were 0.68-0.88; item-total correlation was >0.30, except for two items; item homogeneity index was >0.30, and inter-item correlation values 0.14-0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d.=18.57). EC-PC presented strong correlation with social support (rS=0.61) and moderate correlation with life satisfaction (rS=0.46). Weak and negligible correlations were found with the other scales. Internal validity correlations ranged from 0.46 to 0.78. EC-PC total scores were significantly different for each severity level based on Hoehn and Yahr and Clinical Impression of Severity Index, but not for Patient Global Impression of Severity. The EC-PC has satisfactory acceptability, reliability, precision, and validity to evaluate living with PD.
eng
Living with chronic illness scale: international validation of a new self-report measure in Parkinson's disease
journal article
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URL
https://repisalud.isciii.es/bitstreams/9c82582d-d1ac-4b42-a53c-e98c2525f19a/download
File
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application/pdf
LivingWithChronicIllness_2016.pdf
URL
https://repisalud.isciii.es/bitstreams/11e75f5a-fc02-43ce-af3d-49cd3ce069ac/download
File
MD5
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text/plain
LivingWithChronicIllness_2016.pdf.txt