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00925njm 22002777a 4500 dc Micai, Martina author Ciaramella, Antonio author Salvitti, Tommaso author Fulceri, Francesca author Fatta, Laura Maria author Poustka, Luise author Diehm, Robert author Iskrov, Georgi author Stefanov, Rumen author Guillon, Quentin author Rogé, Bernadette author Staines, Anthony author Sweeney, Mary Rose author Boilson, Andrew Martin author Leósdóttir, Thora author Saemundsen, Evald author Moilanen, Irma author Ebeling, Hanna author Yliherva, Anneli author Gissler, Mika author Parviainen, Tarja author Tani, Pekka author Kawa, Rafal author Vicente, Astrid author Rasga, Célia author Budişteanu, Magdalena author Dale, Ian author Povey, Carol author Flores, Noelia author Jenaro, Cristina author Monroy, Maria Luisa author Garcia-Primo, Patricia author Charman, Tony author Cramer, Susanne author Warberg, Christine Kloster author Canal-Bedia, Ricardo author Scattoni, Maria Luisa author Posada De la Paz, Manuel author Schendel, Diana author 2021-05-28 The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated the knowledge and health service experiences of users and providers to generate new hypotheses and scientific investigations that would contribute to improvement in health care for autistic adults. An online survey designed for autistic adults, carers of autistic adults, and professionals in adult services was translated into 11 languages and distributed electronically by organizations and in-country adult service facilities in 2017; 522 autistic adults, 442 carers, and 113 professionals provided answers to the health questions. Professionals, the majority in non-medical services, appeared to be poorly informed about whether certain co-occurring conditions were more frequent in autistic adults than typical adults-especially some medical conditions, suicide attempts, accidents, and pain. A minority of autistic adults reported preventive health behaviors such as routine health check-ups. The majority of users and providers expressed the desire to make health care services more user-friendly for autistic adults. Among the three groups, <20% of responders knew an organization or clinician which has developed a way to monitor health, and prevent poor health, that works well for adults on the autism spectrum. The results point to means for better management of co-occurring conditions associated with autism in adulthood in order to reduce hospital admissions and potential areas of improvement in health and social services for autistic adults. Specifically, efforts should be focused on (1) professionals' education on risks for co-occurring conditions in autistic adults; (2) promoting preventive health behaviors; (3) making services user-friendly for autistic adults and their families; and (4) encouraging knowledge of good local services. Front Psychiatry. 2021 May 28;12:614102. DOI: 10.3389/fpsyt.2021.614102 1664-0640 Frontiers in Psychiatry 34122158 http://hdl.handle.net/20.500.12105/13140 Adults Autism spectrum disorder Co-occurring conditions Health Services Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project