TY  - GEN
AU  - Labrador Cañadas, Mª Vicenta
AU  - Pàmpols Ros, Teresa
AU  - Dulín Íñiguez, Elena
AU  - Pérez Aytés, Antonio
AU  - García Sagredo, José Miguel
AU  - Díaz de Bustamante, Aránzazu
AU  - Martin Arribas, Maria Concepcion
AU  - Garcia Lopez, Fernando Jose
AU  - Nicolás Jiménez, Pilar
PY  - 2021
UR  - http://hdl.handle.net/20.500.12105/11805
AB  - Decision making for the development of newborn screening programs is based on not only medical but also social concerns and involves different stakeholders. Part III of the article focuses on their role in the governance of the programs. First of all,...
LA  - spa
PB  - Ministerio de Sanidad (España)
KW  - Ethical
KW  - legal and social issues (ELSIs)
KW  - Evidentiary model of policy development
KW  - Extemporary model
KW  - Governance of newborn screening programs
KW  - Models of development of newborn screening policies
KW  - Newborn screening
KW  - Newborn screening for rare diseases
KW  - Patient organizations
KW  - Psychosocial aspects
KW  - Scientific and professional societies
KW  - Spain
TI  - Medio Siglo de Cribado Neonatal en España: Evolución de los Aspectos Éticos, Legales y Sociales (Aels). Parte I, Aspectos Éticos
T2  - Half a century of newborn screening in Spain: Evolution of ethical, legal and social issues (ELSIs). Part III, social issues
TY  - research article
ER  -