TY  - GEN
AU  - Hansson, Mats G
AU  - Lochmüller, Hanns
AU  - Riess, Olaf
AU  - Schaefer, Franz
AU  - Orth, Michael
AU  - Rubinstein, Yaffa
AU  - Molster, Caron
AU  - Dawkins, Hugh
AU  - Taruscio, Domenica
AU  - Posada De la Paz, Manuel
AU  - Woods, Simon
PY  - 2016
DO  - 10.1038/ejhg.2016.52
UR  - http://hdl.handle.net/20.500.12105/15578
AB  - There is a growing concern in the ethics literature and among policy makers that de-identification or coding of personal data and biospecimens is not sufficient for protecting research subjects from privacy invasions and possible breaches of...
LA  - eng
PB  - Nature Publishing Group
KW  - International Cooperation
KW  - Biomedical Research
KW  - Genetic Privacy
KW  - Genetic Testing
KW  - Humans
KW  - Rare Diseases
TI  - The risk of re-identification versus the need to identify individuals in rare disease research
TY  - research article
ER  -