TY  - CPAPER
AU  - Taruscio, Domenica
AU  - Gainotti, Sabina
AU  - Vittozzi, Luciano
AU  - Bianchi, Fabrizio
AU  - Ensini, Monica
AU  - Posada De la Paz, Manuel
PY  - 2012
DO  - 10.1186/1750-1172-7-S2-A22
SN  - 1750-1172
UR  - http://hdl.handle.net/20.500.12105/15597
LA  - eng
PB  - BioMed Central (BMC)
KW  - Rare diseases
KW  - European Union
KW  - EPIRARE project
KW  - Governing Body
KW  - Expert Advice
KW  - Platform Service
TI  - EPIRARE survey on activities and needs of rare disease registries in the European Union
TY  - conference paper
ER  -