TY  - GEN
AU  - Angelis, Aris
AU  - Kanavos, Panos
AU  - López-Bastida, Julio
AU  - Linertová, Renata
AU  - Oliva-Moreno, Juan
AU  - Serrano-Aguilar, Pedro
AU  - Posada De la Paz, Manuel
AU  - Taruscio, Domenica
AU  - Schieppati, Arrigo
AU  - Iskrov, Georgi
AU  - Brodszky, Valentin
AU  - Graf von der Schulenburg, Johann Matthias
AU  - Chevreul, Karine
AU  - Persson, Ulf
AU  - Fattore, Giovanni
AU  - BURQOL-RD Research Network
PY  - 2016
DO  - 10.1007/s10198-016-0783-4
UR  - http://hdl.handle.net/20.500.12105/15576
AB  - Background: The aim of this study was to determine the social/economic costs and health-related quality of life (HRQOL) of patients with epidermolysis bullosa (EB) in eight EU member states. Methods: We conducted a cross-sectional study of patients...
LA  - eng
PB  - Springer
KW  - Epidermolysis bullosa
KW  - Cost-of-illness
KW  - Social cost
KW  - Health-related quality of life
KW  - European Union
KW  - Rare disease
KW  - Cost of Illness
KW  - Health Care Costs
KW  - Quality of Life
KW  - Adolescent
KW  - Adult
KW  - Caregivers
KW  - Child
KW  - Cross-Sectional Studies
KW  - Epidermolysis Bullosa
KW  - Europe
KW  - European Union
KW  - Female
KW  - Humans
KW  - Male
KW  - Middle Aged
KW  - Patient Care
KW  - Sick Leave
KW  - Sickness Impact Profile
KW  - Socioeconomic Factors
TI  - Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe
TY  - research article
ER  -