TY  - GEN
AU  - Gainotti, Sabina
AU  - Turner, Cathy
AU  - Woods, Simon
AU  - Kole, Anna
AU  - McCormack, Pauline
AU  - Lochmüller, Hanns
AU  - Riess, Olaf
AU  - Straub, Volker
AU  - Posada De la Paz, Manuel
AU  - Taruscio, Domenica
AU  - Mascalzoni, Deborah
PY  - 2016
DO  - 10.1038/ejhg.2016.2
UR  - http://hdl.handle.net/20.500.12105/15577
AB  - The increased international sharing of data in research consortia and the introduction of new technologies for sequencing challenge the informed consent (IC) process, adding complexities that require coordination between research centres worldwide....
LA  - eng
PB  - Nature Publishing Group
KW  - International Cooperation
KW  - Databases, Nucleic Acid
KW  - European Union
KW  - Genetic Diseases, Inborn
KW  - Genetics, Medical
KW  - Humans
KW  - Information Dissemination
KW  - Informed Consent
KW  - Rare Diseases
TI  - Improving the informed consent process in international collaborative rare disease research: effective consent for effective research
TY  - research article
ER  -