TY  - GEN
AU  - Valdivielso, Pedro
AU  - Jacinto, Marta
AU  - Devernois, Guillemette
AU  - Laplana, Jorge
AU  - García-Fernández, Maria
AU  - Martin, Ludovic
PY  - 2021
DO  - 10.1186/s13023-021-01703-w
UR  - http://hdl.handle.net/20.500.12105/18248
AB  - Patients have been showing a growing interest in taking active participation in decision making, and having the opportunity to drive clinical investigation. This is more common for patients who have a rare disease than for those with more prevalent...
LA  - eng
PB  - BioMed Central (BMC)
KW  - Connective tissue
KW  - Rare disease
KW  - Spain
KW  - Associations
KW  - Calcification
KW  - Tejido conectivo
KW  - Enfermedades raras
KW  - España
KW  - Asociación
KW  - Calcificación fisiológica
KW  - European Union
KW  - France
KW  - Humans
KW  - Portugal
KW  - Spain
KW  - Connective Tissue
KW  - Rare Diseases
KW  - Decision Making
TI  - Role of patients associations in connective tissue calcifiying diseases: a position statement from EuroSoftCalc.Net group
TY  - research article
ER  -