TY  - GEN
AU  - Forman, John
AU  - Taruscio, Domenica
AU  - Llera, Virginia A
AU  - Barrera, Luis A
AU  - Coté, Timothy R
AU  - Edfjäll, Catarina
AU  - Gavhed, Désirée
AU  - Haffner, Marlene E
AU  - Nishimura, Yukiko
AU  - Posada De la Paz, Manuel
AU  - Tambuyzer, Erik
AU  - Groft, Stephen C
AU  - Henter, Jan-Inge
AU  - International Conference for Rare Diseases and Orphan Drugs (ICORD)
PY  - 2012
DO  - 10.1111/j.1651-2227.2012.02705.x
UR  - http://hdl.handle.net/20.500.12105/15595
AB  - There are more than 6000 rare diseases (defined as affecting <5/10 000 individuals in Europe, <200 000 people in the United States). The rarity can create problems including: difficulties in obtaining timely, accurate diagnoses; lack of experienced...
LA  - eng
PB  - Wiley
KW  - Orphan drugs
KW  - Public health
KW  - Rare diseases
KW  - Biomedical Research
KW  - Global Health
KW  - Health Policy
KW  - Health Services Accessibility
KW  - Rare Diseases
KW  - Clinical Trials as Topic
KW  - Humans
KW  - Orphan Drug Production
KW  - Patient Advocacy
KW  - Patient Rights
TI  - The need for worldwide policy and action plans for rare diseases
TY  - research article
ER  -