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dc.contributor.authorAmbrosio, Leire
dc.contributor.authorPortillo, Mari Carmen
dc.contributor.authorRodriguez-Blazquez, Carmen 
dc.contributor.authorRodríguez-Violante, Mayela
dc.contributor.authorMartínez-Castrillo, Juan Carlos
dc.contributor.authorCampos Arillo, Víctor
dc.contributor.authorGarretto, Nélida
dc.contributor.authorArakaki, Tomoko
dc.contributor.authorSerrano-Dueñas, Marcos
dc.contributor.authorÁlvarez, Mario
dc.contributor.authorPedroso Ibáñez, Ivonne
dc.contributor.authorCarvajal, Ana
dc.contributor.authorMartinez-Martin, Pablo
dc.identifier.citationNPJ Parkinsons Dis. 2016 Oct 20;2:16022.es_ES
dc.description.abstractUnderstanding how a person lives with a chronic illness, such as Parkinson's disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean±s.d.) 66.67±10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach's alpha values were 0.68-0.88; item-total correlation was >0.30, except for two items; item homogeneity index was >0.30, and inter-item correlation values 0.14-0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d.=18.57). EC-PC presented strong correlation with social support (rS=0.61) and moderate correlation with life satisfaction (rS=0.46). Weak and negligible correlations were found with the other scales. Internal validity correlations ranged from 0.46 to 0.78. EC-PC total scores were significantly different for each severity level based on Hoehn and Yahr and Clinical Impression of Severity Index, but not for Patient Global Impression of Severity. The EC-PC has satisfactory acceptability, reliability, precision, and validity to evaluate living with PD.es_ES
dc.publisherNature Publishing Group es_ES
dc.relation.isversionofPublisher's versiones_ES
dc.titleLiving with chronic illness scale: international validation of a new self-report measure in Parkinson's diseasees_ES
dc.rights.licenseAtribución 4.0 Internacional*
dc.rights.licenseAtribución 4.0 Internacional*
dc.identifier.journalNPJ Parkinson's Diseasees_ES
dc.repisalud.centroISCIII::Centro Nacional de Epidemologíaes_ES

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