Por favor, use este identificador para citar o enlazar este Item:http://hdl.handle.net/20.500.12105/12024
Título
Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study
Autor(es)
Scattoni, Maria Luisa | Micai, Martina | Ciaramella, Antonio | Salvitti, Tommaso | Fulceri, Francesca | Fatta, Laura Maria | Poustka, Luise | Diehm, Robert | Iskrov, Georgi | Stefanov, Rumen | Guillon, Quentin | Rogé, Bernadette | Staines, Anthony | Sweeney, Mary Rose | Boilson, Andrew Martin | Leósdóttir, Thora | Saemundsen, Evald | Moilanen, Irma | Ebeling, Hanna | Yliherva, Anneli | Gissler, Mika | Parviainen, Tarja | Tani, Pekka | Kawa, Rafal | Vicente, Astrid | Rasga, Célia | Budişteanu, Magdalena | Dale, Ian | Povey, Carol | Flores, Noelia | Jenaro, Cristina | Monroy, Maria Luisa | Garcia-Primo, Patricia ISCIII | Charman, Tony | Cramer, Susanne | Warberg, Christine Kloster | Canal-Bedia, Ricardo | Posada De la Paz, Manuel ISCIII | Schendel, Diana
Fecha de publicación
2021-01-27
Cita
J Autism Dev Disord. 2021 Nov;51(11):4129-4146.
Idioma
Inglés
Tipo de documento
journal article
Resumen
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.
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